Bella was [re]casted again this morning, in her second-choice color: PINK. [Thank God that gray, her first color selection--is not available!] Today marks her one-year anniversary. And I am astounded at her growth and progress. Her passion and zeal for life has only increased. The way she processes all of this experience as normal, continues to stop me in my tracks. She handles her circumstances far better than I would as an adult. She is a fiery little four year old. And unstoppably determined in all she does.
Her compassionate personality and tender heart is infectious, and her nurses and primary physicians/surgeons at UH Rainbow Babies repeatedly surprise me with their love for her and their commitment to not only her body, but her heart as well. It moves me to tears.
Bella is fortunate to see the head pediatric orthopedic surgeon at UH. And she is blessed to have been befriended by his personal nurse. This woman knows Bella. Knows intimately who she is, and she endlessly surprises Bella with the delights of her heart. This morning, while Bella was sleeping under anesthesia, this nurse had a nearly-identical-to-Bella's cast made + formed on Francie [Bella's doll baby, and much like her mini-me]. Francie was wrapped and cared for as tenderly as Bella herself. In the same shocking pink fiberglass, and cotton padding.
I called the nurse less than a week ago, noting that Bella seemed uncomfortable in her previous cast. Her first response was to rearrange the surgeon's schedule and recast the very next day. To provide Bella with comfort. Immediately. We are blessed beyond measure to have access to this care, though costly, because Bella is loved by this team--like a princess. And the progress we are all making together has been astonishing and life-changing. For that, I thank our God, and everyone in our circle of friends + family who lift us up in prayer. A year ago, Bella's curve registered in the upper 50 degrees. [Insert gasp]. Today, fitted in her cast, we are righting the curve to around 20 degrees, and she is spinning around the kitchen floor like the ballerina she dreams of becoming.