I am beside myself with Awe. And overwhelming appreciation.
Today, sweet Bella was re-casted. And again, we claim this cast to be the best-to-date; the once-daunting number has again been made smaller. Smaller even than I ever let myself hope for.
Her bright pink cast is holding her curve today at a mere 15º--from the initial 56º scan that began this long journey. That is a 41º improvement overall. The difference between these numbers is emotionally unfathomable. Readers unfamiliar with our medical journey of first-frustration and overwhelming fear, and then subsequent and increasingly greater victories can catch up
here,
here and
here.
So here it is, I am ecstatic and giddy, and just so so thankful for:
211. bright pink fiberglass casts. and green ones, and yellow ones too. And thank God they don't make gray ones.
212. 15º and the sound of a number both so easily pronounceable, and medically manageable.
213. health insurance, and medical sanction waivers that allow for Bella's continued care at Rainbow Babies. As frustrating as all of the fighting, and forms, and phone calls can be, I am thankful that we are again covered, and the decisions and directions of our preferred care are again confirmed by both progress and insurance. The mighty sum we would owe otherwise would be insurmountable.
214. Connie, who is by far the best nurse and friend that Belle and our family could ever wish for as a partner and advocate for her care. The very nurse that also makes it her priority, after Bella, to cast her baby doll Francie as well. So they can match. Identically. These seemingly little, though grand gestures of love.
215. Doctor Thompson and his both brilliant and patient advice, more than two years ago now, that led us down this non-surgical treatment path. Moreover, his generosity and care for Bella as a person beyond a patient is character far beyond what we have found in our medical experiences prior.
216. Cast day, and all of the celebratory traditions that have been built into the day by the Dave. The first stop after casting is
PLAYmatters, a local toy store that is teeming with fabulous creative play selections. Bella chooses one for herself, and then one for brother. Following Bella + Daddies time shopping, we all meet up for breakfast-for-lunch at
Yours Truly, another local treat situated on Shaker Square. And we simply share a meal and conversation--centered on the morning's good news--as a family.
217. the slow-but-sure progress we continue to witness. The betterment that is re-shaping not only Bella's spine, but all of our hearts and lives. And for that, I am grateful beyond measure.
218. the giggly happy girl of Bella.
219. the silly and supportive little man of Nate.
220. the strong and steady-sure Dave. Always patient, and trusting hopeful. For his perspective and wisdom and heart, and the fine leadership of our family.